Connecting preventative diagnostics and educate peoples as early as possible, before they become patients. Inefficacy of most trial medicines, and fear of risks are fundamental factors at play for current patients. Isolated, costs, or even denials of access information for patients are really bad.
HIPAA by itself, the underlying isolated, non-compatible storage of information from one clinic to another, (outdated) digital infrastructure is the first obstacle. Patients should never be asked to pay for the diagnosis information made for them and shall always access those information (and being informed) as soon as they are available. Weeks and months waiting, or even no notification at all, shall be addressed immediately. Make preventive diagnosis the routine to screen for trials down the road. Fundamentally sensory technology needs to be updated in current practice.
Don't focusing on immediate increase. Because this is fundamentally requires a drastic mentality change in the trial industry. Down the road, when the upgrade on digital infrastructure and the sensory technology deployed, the screening and availability of potential patients' diagnostics information will drastically make game change on the two factors mentioned, namely, inefficacy of drugs/methods, and fear of risks.
Through information infrastructure upgrade and law changes.
Segmented infrastructure, complicated legal system, and slow to change infrastructure are fundamentally beyond a single entity's capacity. Only is it possible through "macroscopic" collaborations, and well organized, longer-term planning, and execution, by putting patients - albeit peoples' interest before they become patients - at the top of agenda. Shift our eye sight away from pure trails of any singular medicine or methods.
